We had the opportunity to interview Melissa Rittase at the American Cancer Society about her work for the Cancer Prevention Study-3 (CPS-3) cohort. Her position is to help manage the cancer prevention study cohorts, including contributing to survey design, participant communications, data processing, and management, among other study and participant management work. Melissa's primary goal is to be the driver of participant engagement, participant experience, understanding the data coming in, and processing the surveys. This allows her to act as an intermediary between the participants and the researchers analyzing the data.
Move a significant portion of the CPS-3 to an online participant portal to gather data more frequently in a more timely manner.
The overarching goal of the American Cancer Society as a whole is to free the world from cancer. As part of that, they focus on prevention, survivorship, help guide decisions that impact people's daily lives. To assist with this overarching goal, the ACS has partnered with QuestionPro Communities to supplement the traditional 12-20 page surveys sent every three years with an online participant portal.
The Cancer Prevention Study (CPS)-3 is the cohort of a modern era. The American Cancer Society's Epidemiology Research Program invited men and women between the ages of 30 and 65 who had no personal history of cancer to join this historic research study. The ultimate goal was to enroll at least 300,000 adults from various racial and ethnic backgrounds from across the United States and Puerto Rico. In December 2013, they completed the initial recruitment of CPS-3, with over 304,000 participants.
Currently, every three years, participants of the CPS-3 cohort receive a 12-20 page paper survey or online link that can take up to 45min to complete. With the implementation of a participant portal, the ACS is looking to touch base with participants more often but with shorter surveys and quick feedback opportunities. This empowers ACS to gather insights frequently to make critical decisions with speed and accuracy.
Using this method, the ACS can test how participants like engaging with their organization once a month (as opposed to every three years) while also testing different platform functionalities.
Over the next few years, participants will be mostly moved online, and a combination of paper and online surveys will continue being used for the large survey conducted every three years.